Entering profile data
- Alanna Connolly (Unlicensed)
- Le-Tisha Kable
- Max Grigg
This page contains all information related to entering the profile collection into palCentre. To navigate quickly to a section within this page, please use the menu below:
Profile collection overview
The profile data collection reflects a single point of assessment occurring in any setting at any time, depending on the data collection protocol. The intent of the collection is to provide a comprehensive profile of patients with identified palliative care needs in situations where the outcome collection is neither suitable nor possible.
The profile data collection is separate from the outcome data collection. A single patient can have both outcome collection data and profile instances.
If you need more information on the type of data you are entering please contact PCOC.
Accessing the profile screen
Once a patient has been created in palCentre, you can then add in a profile instance for that patient. To access the profile screen, click on the next to the patient name.
The profile collection screen will appear.
Profile instances that have been completed for a patient will appear in the list on the left hand side of the screen. The patient's details appear above the list of profile instances.
On the right hand side of the screen, the assessment scores associated with the profile instance that is highlighted on the left hand side of the screen. To look at the assessments for a different profile instance, highlight the profile instance that you are interested in on the left hand side of the screen.
Creating a profile instance
To create a profile instance, click on the purple 'Add new profile' button in the top right hand corner of the screen.
The data entry box below will appear. All data entry occurs in a single screen for the profile data collection.
The following information needs to be entered on this screen:
Item to be entered | Additional information |
|---|---|
Team | Only required if you have more than one team entering data. This value can also be defaulted in your user settings. |
Referral date | Only required for patients that are part of the collection streams Specialist Palliative Care - Adults and Specialist Palliative Care - Paediatrics |
Primary reason for referral | Only required for patients that are part of the collection streams Specialist Palliative Care - Adults and Specialist Palliative Care - Paediatrics |
Referring service type | Only required for patients that are part of the collection streams Specialist Palliative Care - Adults and Specialist Palliative Care - Paediatrics |
Assessment date | This is a mandatory item - you cannot submit this screen without this information. |
Assessment location | |
Assessment mode | |
Patient present for assessment | |
Patient/family issues at assessment | Tick all that apply |
Advanced care plan in place | |
Actions arising from assessment | Tick all that apply |
Planned followup | |
SAS | The SAS is a patient rated tool with a score between 0 and 10 that measures the patient's distress across seven domains (difficulty sleeping, appetite problems, nausea, bowel problems, fatigue and pain). There is also a field to capture if the patient or a proxy completed these assessments. |
PCPSS | The PCPSS consists of four items (pain, other symptoms, psychological/spiritual and family/carer) with a score between 0 and 3 and screens the severity of palliative care problems. |
AKPS | The AKPS consists of one item with a score between 10 and 100 and measures a patient's ability to perform ordinary tasks. |
RUG-ADL | The RUG-ADL consists of four items (bed mobility, toileting, transfer and eating) and measures the patients function. |
Once all the information has been entered, click on 'Submit'.
The profile instance then appear in the list on the profile screen
If an item has not been recorded on the form, use the 'Not Assessed' or 'Not Recorded' code in the drop down menu. This will ensure you have minimal items appearing on your data quality report.
Editing a profile instance
To change any of the profile instance details, click on the next to the profile instance you wish to change.
This will bring up the profile form to add or change any details. Click on submit once you have edited the details.
The profile instance has now been modified.
Viewing/Exporting profile assessment reports
To view the reports for the Profile Assessments you have two options:
Click on the
button of the assessment row to view a report of that assessment
Click on the "View Report" in the top right to view a report of all the patients Profile Assessments
The reports will be opened in PDF form.
Deleting an profile instance
To delete a profile instance, click on the next to the profile instance you wish to delete.
A warning box will come up to check that you wish to delete this profile instance. Click on 'Yes'
The profile instance has now been deleted.